The Foundation

A Song for Life Sarcoidosis Foundation is a non-profit organization that advocates Sarcoidosis awareness, education & supports sufferers of Sarcoidosis.

ASFL Tele-Support Meetings

Providing 

"Virtual Shoulders to Lean On"

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Follow ASongforSarcoid on Twitter

Events
Deloris D. Mayo Sarcoidosis Walk for Sarcoidosis on Saturday, July 14, 2012
Posted on May 7th

ASFL Announcements, Blogs & News
10 Year Old Will Attempt to Set a World Record in Honor of Sarcoidosis Awareness
Posted by Jaz W. Owens

 

10 Year Old Jared Owens will attempt to set a World Record in honor of Sarcoidosis sufferers worldwide during April's Sarcoidosis Awareness...Read More
Untitled
Posted by Jaz W. Owens

“Shoulders to Lean On Outreach Program”

By the A Song for Life Sarcoidosis Foundation

 

When you come to...Read More

Untitled
Posted by Jaz W. Owens

“Like a Thief in the Night”

(Extended Version)

 

Like a thief in the night, IT snuck up...Read More

DISCLOSURE

Until the A Song for Life Sarcoidosis Foundation receives its tax free 501c3 status, ALL monetary forms of support to us are considered "GIFTS" and are not tax deductible at this time. 

However if you wish to support Sarcoidosis AND receive a tax deductible benefit the A Song for Life Sarcoidosis Foundation strongly encourages you to make a direct donation to Sarcoidosis research because funding is desperately needed to help find a cause and one day a cure!! 

Suggested Research Program:

Albany Medical College

 

c/o Marc Judson, M.D.

 

SarcoidosisResearch

 

47 New Scotland Avenue

 

Albany, New York 12206

 

USA

 

IMPORTANT NOTICE

Thank You for Your Interest in the ​A Song for Life Sarcoidosis Foundation's Online Network!

Unfortunately the ASFL online network has reached it's membership capacity and is unable to accept new members at this time.  Please know that we value your participation and would love to still connect with you so we encourage you to please join &/or "Like" our Facebook page at: www.facebook.com/ASongforSarcoid and we promise to keep you posted on when the website has been upgraded to accept new members!!

Thank You,

~ Jaz Owens, Founder

Members
Jennifer
Joined: Sep 28th
charmaine
Joined: Sep 27th
Bethw76
Joined: Aug 9th
Darlene07
Joined: Jun 5th
Dawnie
Joined: May 9th 2011
Ed D
Joined: Apr 16th 2011
Carol
Joined: Apr 14th 2011
Dani Walker
Joined: Apr 10th 2011
Natasha
Joined: Mar 16th 2011
Leslie-Robin
Joined: Mar 9th 2011
ValS
Joined: Mar 6th 2011
kassiem
Joined: Mar 4th 2011
Rubi
Joined: Mar 3rd 2011
 Delia
Joined: Feb 24th 2011
snappykappy
Joined: Feb 15th 2011
Margaret
Joined: Jan 26th 2011
Trisshona
Joined: Jan 22nd 2011
cherylwlbrn
Joined: Oct 12th 2010
Charles
Joined: Oct 4th 2010
Janet Bryant
Joined: Oct 4th 2010
fightingsarcoid
Joined: Sep 9th 2010
Jewell
Joined: Aug 12th 2010
Elizabeth
Joined: Jul 3rd 2010
Janis
Joined: Jun 27th 2010
Tamika denise Poole
Joined: Jun 27th 2010
Drea
Joined: Jun 17th 2010
Ruby
Joined: Jun 11th 2010
Maddylicious
Joined: Jun 11th 2010
MzGloria PrettyWings Shelia E  Nicholson
Joined: Jun 8th 2010
IN THE SPOTLIGHT

The ASFL Sarcoidosis Foundation

CONGRATULATES

​​JARED F. OWENS

 

Who set a WORLD RECORD during JSOF's 8th Annual Sarcoidosis Walk for a Cure on Saturday; April 21, 2012 in Honor of Sarcoidosis Awareness & Sufferers Worldwide!

​ASFL and people of the Sarcoidosis Community appreciate the effort and dedication it took to accomplish this goal.

 

 

A Look Into Living with Sarcoidosis
Life & Breath Foundation Video
Added by Jaz W. Owens
Posted on March 16th 11
0 Comments
But You Don't Look Sick
Added by Jaz W. Owens
Posted on March 16th 11
0 Comments
Sarcoidosis Mini-Doc by Sharon D. Mayo-Taylor
Added by Jaz W. Owens
Posted on May 7th 12
0 Comments
IN THE NEWS

Sarcoidosis Makes Ebony Magazine!!

See page 80 in the April issue which is the Whitney Houston Tribute Edition . . . Purchase your copy today!

 

 

Sarcoidosis ~ A Quiet Epidemic!

There is a silent killer out there, plaguing the lives of so many . . . masquerading itself as other conditions (Lupus, Rheumatoid Arthritis and sometimes even Heart Attacks) but it cleverly manifests itself erratically within the cells and organs of innocent bystanders without “fair” warning!! This “mystery” inhabitant is called Sarcoidosis (Sar-coy-doe-sis) and it seeks to destroy!  Sarcoidosis has already “secretly” claimed the lives of so many people (those we know and some we don’t) and the list grows daily! It is up to us (Sarcoid suffers along with family & friends who helplessly standby us) to fight against this disease by speaking out loud about it!  It is our responsibility to shed light on the urgency of this quiet epidemic and find ways to hold it at bay . . . it’s a matter of life & living!

WHAT IS SARCOIDOSIS (sar-coy-doe-sis)?

Sarcoidosis is an inflammatory disease that produces grain-like lumps called granulomas (formation of inflamed tissue) that usually develop in or near the lungs and causes enlarging of the lymph nodes. Sarcoidosis is known as a multi-systemic disorder because it has the ability to affect any system in the body; the lungs, heart, eyes, liver, kidneys, skin and the central nervous system including the brain! Sarcoidosis is not contagious but it can potentially be fatal due to its erratic behavior in the body, the absence of effective treatments that have the ability to control the progression of this disease and the fact that there is NO KNOWN CURE!!

Through "A Song for Life Sarcoidosis Foundation" it is my desire and my personal quest to raise awareness about Sarcoidosis through the personal experiences of sufferers and their families. It is my hope that real life experiences accompanied by current medical research and information about natural alternatives will aid in managing this disease while providing an edge toward beating it.

If you or someone you know suffer from Sarcoidosis please post your thoughts, questions, concerns and most of all your experience with this disease!

Please Speak Out . . . An active voice is more effective than quiet compassion!

~ Jaz Owens, Founder & Sarcoid Suffer


 

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SARCOIDOSIS RESEARCH

Research in Sarcoidosis is so very important . . . Without research programs and the participation of patience, it will be quite difficult to find a cause and cure!  

The University of Iowa is conducting an online survey for people affected by Sarcoidosis called W.I.S.E. - W​ORLDWI​D​E S​ARCOIDOSIS RE​SEARCH STUDY. This survey was set up to assist researchers in collecting data that will help them better understand the disease and it's global impact. I encourage ALL of you living with Sarcoidosis to register and complete this online questionnaire at your convenience by going to:www.sarcoidstudy.org

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